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About Association Asperger – Israel - Effie

ראשי >About Effie
 About Association Asperger – Israel (“Effie”)
 
The Association Asperger – Israel (“Effie”), a registered non-profit organization, was established in March 2001 by parents of children diagnosed as having Asperger Syndrome for the purpose of promoting the welfare and advancing the interests of those with Asperger Syndrome. Asperger Syndrome was defined as a distinct syndrome only in the nineteen- nineties. For this reason many of those afflicted have not yet been diagnosed, or have been diagnosed incorrectly, and appropriate methods of treatment have still not been developed. According to the latest findings, about 0.07% of the population suffer from this syndrome so that there is reason to assume that in the State of Israel their number could comprise about 6,000 people. Effie has today more than 300 families as registered members and their number is growing from day to day. The Association is run by an executive committee and all its activists and officers are working as volunteers.
 
Asperger Syndrome is a developmental neurological disorder characterized chiefly by difficulties in forming personal and societal connections. Its characteristics are varied and manifest themselves with differing degrees of severity. People with Asperger have difficulty in deciphering social codes and are liable to err in understanding social situations or relate to them inappropriately. It is difficult for them to understand non-verbal communication and to get accustomed to new situations and changes. They are inflexible in their thinking and inclined to focus excessively on narrow and sometimes esoteric fields of interest. The majority have normal or even above-average intelligence and good verbal and learning capacities. Their special fields of interest and intense pre-occupation with them, as well as their different and original mode of thinking, can be a valuable contribution to society (for example, in innovations and inventions). Difficulties in communication make it impossible for people with the syndrome to realize their abilities and create a gap between their cognitive capacity and their functioning in everyday life. These gaps cause great frustration and at times even depression. Appropriate treatment and intervention will make it possible for them to acquire the needed social skills and help them integrate successfully into all areas of life.
 
Families coping with Asperger syndrome face different challenges and difficulties over time and they are in need of constant help. Asperger Syndrome is usually diagnosed in child developmental departments or by psychiatrists but there is no central body that has all the information families need and there are no clear cut intervention programs. After receiving their children’s diagnosis, parents are forced to fulfill simultaneously the requirements of different
governmental agencies: educational authorities, welfare services, national security offices and more. Moreover, there is a wide gap between their needs and the existing services.
 
In order to ease their difficulties Effie operates a center offering information, support and advice as well as advocacy services to the coping families. The services are free of charge. The volunteers of Effie arrange parent to parent talks and the help they give is based on their personal experience and the knowledge that accumulated in Effie over the years.
 
The center’s role is to
  1. Provide accurate information to families seeking help regarding their rights and the availability of educational and treatment frameworks.
  2. Offer an open line service as well as an active internet site.
  3. Conduct personal meetings with families in need.
  4. Provide assistance in setting up groups for the development of social skills which are the basic treatment tool needed for rehabilitation of children and adults with Asperger.
  5. Promote the awareness of the syndrome by organizing lectures in professional forums, distribute publications and organize conferences such as those held in December 2002, December 2004 and January 2008. The fourth conference will be held in November 2012.
  6. Be the main professional Lobbying body representing the real needs of people with Asperger regarding government services and regulations
 
Effie employment project:
 
Since the beginning of 2012 Effie has been operating a special service aimed at integrating adults with Asperger in the work place in the free market away from “sheltered” solutions. The goals of this service are to find suitable employment for people with the syndrome and provide professional guidance both for the employees and the employers and suitable on going support that will enable them to integrate successfully at their work place. The service provides tailor – made employability solutions according to the abilities and the needs of each person.
The director of the project is a highly skilled professional with years of experience in integrating special populations in employment. 
 About Association Asperger – Israel (“Effie”)
 
The Association Asperger – Israel (“Effie”), a registered non-profit organization, was established in March 2001 by parents of children diagnosed as having Asperger Syndrome for the purpose of promoting the welfare and advancing the interests of those with Asperger Syndrome. Asperger Syndrome was defined as a distinct syndrome only in the nineteen- nineties. For this reason many of those afflicted have not yet been diagnosed, or have been diagnosed incorrectly, and appropriate methods of treatment have still not been developed. According to the latest findings, about 0.07% of the population suffer from this syndrome so that there is reason to assume that in the State of Israel their number could comprise about 6,000 people. Effie has today more than 300 families as registered members and their number is growing from day to day. The Association is run by an executive committee and all its activists and officers are working as volunteers.
 
Asperger Syndrome is a developmental neurological disorder characterized chiefly by difficulties in forming personal and societal connections. Its characteristics are varied and manifest themselves with differing degrees of severity. People with Asperger have difficulty in deciphering social codes and are liable to err in understanding social situations or relate to them inappropriately. It is difficult for them to understand non-verbal communication and to get accustomed to new situations and changes. They are inflexible in their thinking and inclined to focus excessively on narrow and sometimes esoteric fields of interest. The majority have normal or even above-average intelligence and good verbal and learning capacities. Their special fields of interest and intense pre-occupation with them, as well as their different and original mode of thinking, can be a valuable contribution to society (for example, in innovations and inventions). Difficulties in communication make it impossible for people with the syndrome to realize their abilities and create a gap between their cognitive capacity and their functioning in everyday life. These gaps cause great frustration and at times even depression. Appropriate treatment and intervention will make it possible for them to acquire the needed social skills and help them integrate successfully into all areas of life.
 
Families coping with Asperger syndrome face different challenges and difficulties over time and they are in need of constant help. Asperger Syndrome is usually diagnosed in child developmental departments or by psychiatrists but there is no central body that has all the information families need and there are no clear cut intervention programs. After receiving their children’s diagnosis, parents are forced to fulfill simultaneously the requirements of different
governmental agencies: educational authorities, welfare services, national security offices and more. Moreover, there is a wide gap between their needs and the existing services.
 
In order to ease their difficulties Effie operates a center offering information, support and advice as well as advocacy services to the coping families. The services are free of charge. The volunteers of Effie arrange parent to parent talks and the help they give is based on their personal experience and the knowledge that accumulated in Effie over the years.
 
The center’s role is to
  1. Provide accurate information to families seeking help regarding their rights and the availability of educational and treatment frameworks.
  2. Offer an open line service as well as an active internet site.
  3. Conduct personal meetings with families in need.
  4. Provide assistance in setting up groups for the development of social skills which are the basic treatment tool needed for rehabilitation of children and adults with Asperger.
  5. Promote the awareness of the syndrome by organizing lectures in professional forums, distribute publications and organize conferences such as those held in December 2002, December 2004 and January 2008. The fourth conference will be held in November 2012.
  6. Be the main professional Lobbying body representing the real needs of people with Asperger regarding government services and regulations
 
Effie employment project:
 
Since the beginning of 2012 Effie has been operating a special service aimed at integrating adults with Asperger in the work place in the free market away from “sheltered” solutions. The goals of this service are to find suitable employment for people with the syndrome and provide professional guidance both for the employees and the employers and suitable on going support that will enable them to integrate successfully at their work place. The service provides tailor – made employability solutions according to the abilities and the needs of each person.
The director of the project is a highly skilled professional with years of experience in integrating special populations in employment.